Tuesday, July 31, 2018
Fitbit Daily Summary for July 30, 2018
Total steps: 4807
Floors climbed: 0
Calories burned: 2417
Elevation gained: 0 meters
Traveled: 3.05 kilometers
July 30, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2417
Elevation gained: 0 meters
Traveled: 3.05 kilometers
July 30, 2018
via Fitbit
Monday, July 30, 2018
Fitbit Daily Summary for July 29, 2018
Total steps: 5200
Floors climbed: 0
Calories burned: 2447
Elevation gained: 0 meters
Traveled: 3.3 kilometers
July 29, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2447
Elevation gained: 0 meters
Traveled: 3.3 kilometers
July 29, 2018
via Fitbit
Sunday, July 29, 2018
Fitbit Daily Summary for July 28, 2018
Total steps: 4187
Floors climbed: 0
Calories burned: 2340
Elevation gained: 0 meters
Traveled: 2.66 kilometers
July 28, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2340
Elevation gained: 0 meters
Traveled: 2.66 kilometers
July 28, 2018
via Fitbit
Saturday, July 28, 2018
Fitbit Daily Summary for July 27, 2018
Total steps: 4826
Floors climbed: 0
Calories burned: 2413
Elevation gained: 0 meters
Traveled: 3.06 kilometers
July 27, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2413
Elevation gained: 0 meters
Traveled: 3.06 kilometers
July 27, 2018
via Fitbit
Friday, July 27, 2018
Video: Thai Fried Chicken and Papaya Salad - Marion's Kitchen
Thai Fried Chicken and Papaya Salad - Marion's Kitchen
via YouTube https://youtu.be/hLZgSuXiWHw
via YouTube https://youtu.be/hLZgSuXiWHw
Fitbit Daily Summary for July 26, 2018
Total steps: 6214
Floors climbed: 0
Calories burned: 2529
Elevation gained: 0 meters
Traveled: 3.95 kilometers
July 26, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2529
Elevation gained: 0 meters
Traveled: 3.95 kilometers
July 26, 2018
via Fitbit
Thursday, July 26, 2018
Fitbit Daily Summary for July 25, 2018
Total steps: 8078
Floors climbed: 0
Calories burned: 2631
Elevation gained: 0 meters
Traveled: 5.13 kilometers
July 25, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2631
Elevation gained: 0 meters
Traveled: 5.13 kilometers
July 25, 2018
via Fitbit
Wednesday, July 25, 2018
Psoriasis Clinical Trial - I've Made my Decision
I have decided what I am doing in regards to the psoriasis clinical trial. I contacted the dermatology clinic this morning and told them that I am interested in proceeding with the trial.
So here's what will happen. The co-ordinator spoke with my derm, I am to continue taking my methotrexate until the screening appointment, which they are hoping will be in the middle of August. They don't want me to have a flare before then. If I meet the criteria and pass all the necessary blood test requirements I will stop taking the mtx and be part of the trial. If that doesn't happen, I assume that I go back to the original plan of stopping mtx and switching to cyclosporin.
Even though I had reservations about participating in the trial I believe that I will be able to cope with what is expected. I'm not looking forward to all the travel involved but it will give me extra reading time or knitting/crochet time so that has to be a bonus, right?!
One step at a time. Plus I may not even pass the screening. I've not got anything to lose really.
Labels:
biologic,
clinical study,
psoriasis
Fitbit Daily Summary for July 24, 2018
Total steps: 5004
Floors climbed: 0
Calories burned: 2398
Elevation gained: 0 meters
Traveled: 3.18 kilometers
July 24, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2398
Elevation gained: 0 meters
Traveled: 3.18 kilometers
July 24, 2018
via Fitbit
Tuesday, July 24, 2018
Fitbit Daily Summary for July 23, 2018
Total steps: 6840
Floors climbed: 0
Calories burned: 2571
Elevation gained: 0 meters
Traveled: 4.34 kilometers
July 23, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2571
Elevation gained: 0 meters
Traveled: 4.34 kilometers
July 23, 2018
via Fitbit
Monday, July 23, 2018
Fitbit Daily Summary for July 22, 2018
Total steps: 3196
Floors climbed: 0
Calories burned: 2256
Elevation gained: 0 meters
Traveled: 2.03 kilometers
July 22, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2256
Elevation gained: 0 meters
Traveled: 2.03 kilometers
July 22, 2018
via Fitbit
Sunday, July 22, 2018
Video: 10 Cool Art Supplies & Tools To Try | Back To School
10 Cool Art Supplies & Tools To Try | Back To School
via YouTube https://youtu.be/pPFyR5SA3UU
via YouTube https://youtu.be/pPFyR5SA3UU
Fitbit Daily Summary for July 21, 2018
Total steps: 4455
Floors climbed: 0
Calories burned: 2381
Elevation gained: 0 meters
Traveled: 2.83 kilometers
July 21, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2381
Elevation gained: 0 meters
Traveled: 2.83 kilometers
July 21, 2018
via Fitbit
Saturday, July 21, 2018
Psoriasis Clinical Study - Pros and Cons
Here's a list of pros and cons that I have come up with in regards to the clinical trial.
I still don't have a lot of time left to decide if I want this or not.
If I stay with my original decision of cyclosporin I will need to work out which day to start this medication because I have to get blood tests done exactly two weeks after taking my first dose.
I would love to put this in the too hard basket and ignore everything but I am unable to do that due to the time constraints.
Mark and the boys have said it is my decision. They will support me no matter what I decide. While that is great it doesn't help me choose!!
Labels:
clinical study,
pros and cons,
psoriasis
Fitbit Daily Summary for July 20, 2018
Total steps: 4543
Floors climbed: 0
Calories burned: 2374
Elevation gained: 0 meters
Traveled: 2.88 kilometers
July 20, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2374
Elevation gained: 0 meters
Traveled: 2.88 kilometers
July 20, 2018
via Fitbit
Friday, July 20, 2018
Video: Doctor Who: Series 11 Trailer
Doctor Who: Series 11 Trailer
via YouTube https://youtu.be/FEc-OQ_oqDk
via YouTube https://youtu.be/FEc-OQ_oqDk
Video: Homemade Ice Cream Sauce Recipes: Chocolate, Raspberry & Butterscotch
Homemade Ice Cream Sauce Recipes: Chocolate, Raspberry & Butterscotch
via YouTube https://youtu.be/EqXEG4H-HpU
via YouTube https://youtu.be/EqXEG4H-HpU
Psoriasis Dilemma
When I saw my dermatologist on Wednesday I had a decision to make in regards to taking either acitretin or cyclosporin because the methotrexate I was taking was no longer helping. I chose cyclosporin. Which I was going to start last night as I needed to wait for my prescription to arrive at my chemist (they had to order it in). I picked up the script this afternoon.
BUT ... yesterday afternoon I received a phone call asking if I want to be in a clinical study for a biologic. My derm recommended me as I would be a good candidate. The study would involve my travelling in to Melbourne weekly for 16 weeks and monthly for approximately 9 months after that. A high level of commitment is required on my part but I am not a 100% sure I can do it. Also, I would be guaranteed the biologic as it is a comparative study so I wont have to worry about receiving a placebo.
Here's the dilemma, if I go on the study I need to be off any oral medication for my psoriasis for a month before I can start this study (the idea of a flare is making me cringe). I will need to wait 2 to 3 weeks before I can have my initial consultation to see if I even qualify. I only have a short period of time to decide as there are only 450 places worldwide. It's a first in first served deal and the limited spaces are filling up.
OR I can just begin taking the cyclosporin and hope that works.
The idea of going on a biologic is very appealing. It's a way to jump straight to a biologic instead of having to try other options that medicare wants patients to try first before they even allow this 'new' stuff. However, I don't know if I will be able to fulfil the requirements for such a long period of time.
Labels:
clinical study,
Medicare,
medication,
psoriasis
Fitbit Daily Summary for July 19, 2018
Total steps: 6014
Floors climbed: 0
Calories burned: 2533
Elevation gained: 0 meters
Traveled: 3.82 kilometers
July 19, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2533
Elevation gained: 0 meters
Traveled: 3.82 kilometers
July 19, 2018
via Fitbit
Thursday, July 19, 2018
Video: Ultimate Thai Beef Salad - Marion's Kitchen
Ultimate Thai Beef Salad - Marion's Kitchen
via YouTube https://youtu.be/nyaOv6lOJjs
via YouTube https://youtu.be/nyaOv6lOJjs
Thankful Thursday
Here's what I am thankful for:
- being blessed enough to be able to travel interstate to visit Mark's family
- Mark being able to travel without too many worries with his health
- the helpful staff while flying with both Qantas and Virgin airlines
- family - Mark's family, well they are mine as well, are wonderful and I am so grateful that we were able to stay with them in their homes
- gorgeous weather while we were on holiday
- the boys and how they were able to look after themselves while we were gone
- being able to organise all of Brodie's Temple clothing for when he received his endowment
- being able to purchase some new Temple clothing of my own
- for kitty cat snuggles with C.K. and Missy Issy
I am sure I could add a whole lot more but these are the ones that stand out the most. What are you thankful for this week?
Labels:
ThankfulThursday
Fitbit Daily Summary for July 18, 2018
Total steps: 6705
Floors climbed: 0
Calories burned: 2582
Elevation gained: 0 meters
Traveled: 4.26 kilometers
July 18, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2582
Elevation gained: 0 meters
Traveled: 4.26 kilometers
July 18, 2018
via Fitbit
Wednesday, July 18, 2018
Fitbit Daily Summary for July 17, 2018
Total steps: 4731
Floors climbed: 0
Calories burned: 2399
Elevation gained: 0 meters
Traveled: 3 kilometers
July 17, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2399
Elevation gained: 0 meters
Traveled: 3 kilometers
July 17, 2018
via Fitbit
Tuesday, July 17, 2018
Fitbit Daily Summary for July 16, 2018
Total steps: 6904
Floors climbed: 0
Calories burned: 2486
Elevation gained: 0 meters
Traveled: 4.38 kilometers
July 16, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2486
Elevation gained: 0 meters
Traveled: 4.38 kilometers
July 16, 2018
via Fitbit
Monday, July 16, 2018
Video: BEST Tomato Soup Recipe!
BEST Tomato Soup Recipe!
via YouTube https://youtu.be/aa3gTkJb8iQ
via YouTube https://youtu.be/aa3gTkJb8iQ
Video: Jamie’s Pork Ramen | Jamie Oliver
Jamie’s Pork Ramen | Jamie Oliver
via YouTube https://youtu.be/1ZLBkhNDjqU
via YouTube https://youtu.be/1ZLBkhNDjqU
Fitbit Daily Summary for July 15, 2018
Total steps: 7003
Floors climbed: 0
Calories burned: 2550
Elevation gained: 0 meters
Traveled: 4.46 kilometers
July 15, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2550
Elevation gained: 0 meters
Traveled: 4.46 kilometers
July 15, 2018
via Fitbit
Sunday, July 15, 2018
Fitbit Daily Summary for July 14, 2018
Total steps: 4211
Floors climbed: 0
Calories burned: 2291
Elevation gained: 0 meters
Traveled: 2.67 kilometers
July 14, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2291
Elevation gained: 0 meters
Traveled: 2.67 kilometers
July 14, 2018
via Fitbit
Saturday, July 14, 2018
Fitbit Daily Summary for July 13, 2018
Total steps: 5211
Floors climbed: 0
Calories burned: 2419
Elevation gained: 0 meters
Traveled: 3.31 kilometers
July 13, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2419
Elevation gained: 0 meters
Traveled: 3.31 kilometers
July 13, 2018
via Fitbit
Friday, July 13, 2018
Rockingham Foreshore, Western Australia
Sally & I had a girls day out at the Rockingham foreshore on Monday. On Tuesday Mark and I had lunch at the foreshore with his Mum & Kevin.
Rockingham is such a beautiful place. It's certainly a place that I would considering living.
Garden Island. |
Labels:
beach,
family,
FamilyDayOut,
holidays,
Western Australia
Fitbit Daily Summary for July 12, 2018
Total steps: 6284
Floors climbed: 0
Calories burned: 2570
Elevation gained: 0 meters
Traveled: 3.99 kilometers
July 12, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2570
Elevation gained: 0 meters
Traveled: 3.99 kilometers
July 12, 2018
via Fitbit
Thursday, July 12, 2018
Video: CHRISTOPHER ROBIN Official Trailer # 3 (2018) Ewan McGregor, Winnie the Pooh Disney Movie HD
CHRISTOPHER ROBIN Official Trailer # 3 (2018) Ewan McGregor, Winnie the Pooh Disney Movie HD
via YouTube https://youtu.be/4LFJj4h4WZs
via YouTube https://youtu.be/4LFJj4h4WZs
Fitbit Daily Summary for July 11, 2018
Total steps: 7008
Floors climbed: 0
Calories burned: 2584
Elevation gained: 0 meters
Traveled: 4.46 kilometers
July 11, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2584
Elevation gained: 0 meters
Traveled: 4.46 kilometers
July 11, 2018
via Fitbit
Wednesday, July 11, 2018
Fitbit Daily Summary for July 10, 2018
Total steps: 5505
Floors climbed: 0
Calories burned: 2488
Elevation gained: 0 meters
Traveled: 3.5 kilometers
July 10, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2488
Elevation gained: 0 meters
Traveled: 3.5 kilometers
July 10, 2018
via Fitbit
Tuesday, July 10, 2018
Fitbit Daily Summary for July 9, 2018
Total steps: 4720
Floors climbed: 0
Calories burned: 2400
Elevation gained: 0 meters
Traveled: 2.99 kilometers
July 9, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2400
Elevation gained: 0 meters
Traveled: 2.99 kilometers
July 9, 2018
via Fitbit
Monday, July 09, 2018
Serpentine Falls, Western Australia
We went to Serpentine Falls on Sunday. It's in a National park. What a beautiful place to visit. We truly have been blessed with such lovely weather.
Labels:
family,
FamilyDayOut,
Western Australia
Fitbit Daily Summary for July 8, 2018
Total steps: 5378
Floors climbed: 0
Calories burned: 2422
Elevation gained: 0 meters
Traveled: 3.42 kilometers
July 8, 2018
via Fitbit
Floors climbed: 0
Calories burned: 2422
Elevation gained: 0 meters
Traveled: 3.42 kilometers
July 8, 2018
via Fitbit
Sunday, July 08, 2018
Point Peron, Western Australia
Mark, Sally, Luke and I visited Point Peron this afternoon. It's such a beautiful place to visit. What an amazing view of the Atlantic ocean.
Labels:
family,
FamilyDayOut,
holidays,
Western Australia
Bullet Journal - July
I bought some lovely scrapbooking stickers yesterday. They're all about travelling. Perfect for while Mark and I are in Western Australia.
Labels:
bullet journal,
holidays,
stationery,
travel,
Western Australia
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